Seated in their new home in Victoriaâs Oak Bay neighbourhood, Franke James watches the autumn sun sparkle on the Juan de Fuca Strait with her husband and sister. Itâs a beautiful moment of serenity the family relishesâespecially since the last few years of all of their lives have been anything but peaceful.
Artful disobedience
James has dedicated her 30-year career as a visual artist to creatively and passionately articulate the social justice issues close to her heart. A graduate of the University of Victoriaâs master of fine arts program, her work spans media (billboard installations and broadcast media) and subject matter (including climate change and disability advocacy).
Most recently, James has been setting her artistic focus on matters of international and personal significance. Last year, she published Banned from the Hill, a book recounting her experiences of being censured by the federal government when they blacklistedâ¨a planned European art tour that questioned tar sands development.
Closer to home, she launched a creative campaign called âHuman Rights Should Never Be Disabled,â an effort to publicly raise awareness of human rights violations against people with disabilitiesâ including people like her sister Teresa.
âWe want to change their thinkingâ
James launched the human rights campaign inspired by her sister inâ¨2013. That year, Teresa, who has Down Syndrome, was put into a long-term care nursing home without her agreement and against her fatherâs wishes.
âIf we hadnât stepped in, Teresa would still be in institution,â Franke says.
Teresa is 50 years old and had always lived with her father until last November. Teresa was placed in the home because healthcare workers deemed her incapable of making her own decisions. James disagreed with their assessment of her sisterâs autonomy and abilities. And she was horrified at her placement in theâ¨old age home when Teresa was just 50.
James and her husband Bill helped her father get Teresa officially discharged after four days, and Teresa came to live with James and Bill. Their father moved into a nursing home last December.
But the question of how Teresaâs rights were taken away, and how she was forced into long-term care, is now the subject of a complaint to the Ontario Ministry of Health. Jamesâ humanâ¨rights lawyer filed it in April 2014, and they are still waiting for answers.
In addition to a Change.org petition featuring over 25,000 signatures, James and her husband set to work on a campaign to pressure the government to acknowledge what they see as a violation of human rights for a person with a disability.â¨
The campaign includes a website, TeresaPocock.com, with videos and Frankeâs signature visual blog posts that combine images, text, and illustrations.
Theyâve seen an outpouring of support through social media and on the website, says James. âThereâs so many pages of comments itâs unbelievable,â she says.
âFrankeâs art is message-orientated art. Itâs not art for artâs sake,â Billâ¨says. Of their shared background in advertising through a firm they co- founded in 1989 called The James Gang, âwe want to get peopleâs attention,â he continues. âWe want to change their thinking about the world in some way.â
Teresa was reassessed in January 2014. She was found capable of making decisions for herself, and she signed a new power of attorney for personal care.
Today, sheâs thriving and continuing to live happily with Bill and James. âFranke and I are always believing in the positive thing,â Bill says, âWeâre always emphasizing the positive, like âlook how great Teresa is: she can power-walk. She can do this.ââ
âSheâs changed our lifeâ
These days, James is contributing toâ¨an essay collection, Access to Information and Social Justice: Critical Research Strategies for Journalists, Activists and Scholars, to be edited and published by academics at Carlton University and the University of Winnipeg. It examines access to information through a social justice lens. The collection draws from Jamesâ chapter in Banned from the Hill about her experiences with access to information documents. She hopes her editorial contribution will help educate people about how to read government reports.
âA lot of people, when they get these access [reports], the tendency is just to roll their eyes,â she says, âso I want to teach people how to read these things and understand them.â
James has also been active in the Pull Together campaign, a Vancouver- and Victoria-based campaign to support First Nations legal challenges against the Enbridge pipeline. Supporters donate artwork for auction in the two participating cities. Proceeds fromâ¨the auction go to R.A.V.E.N. Trust, which supports the legal work.
More important than creative projects, however, is the new presence of Teresa⨠in James and her husbandâs lives.
To celebrate the one-year anniversary of Teresaâs release from the nursing home, theyâre planning to continueâ¨their campaign to encourage the Ontario government to respond to Jamesâ human rights complaint.
âThe easiest thing for them to doâ¨is just sweep it under the rug,â says James, âand we donât want it swept under the rug. We want to have them really investigate, see where they made mistakes, own up to it, and change the way that disabled people are treated.â
For her part, Teresa has become a self- advocate with her sisterâs support. Teresa narrates her own videos and her own words are used on the posters. Sheâs worked, through art, to reframe the conversation around her own abilities and the abilities of others facing similar barriers.
With all its ups and downs, the last year has been a rollercoaster. Both James and Bill say they feel lucky and honoured to have gone through it with Teresa. âSheâs changed our life for the better,â says Bill.
âTeresa has opened a whole new chapter in our lives...who knew Iâd be riding the Handy Dart with my sister and seeing the mountains and the ocean every day?â James says. âWe feel very fortunate to have landed here.â
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